View Amendment Current Amendment: 1 to Bill 3036 The Committee on Medical, Military, Public and Municipal Affairs propose the following Amendment No. 1 to H. 3036 (COUNCIL\VR\3036C001.CC.VR19):

Reference is to Printer's Date 12/18/19-H.

Amend the bill, as and if amended, by striking all after the enacting words and inserting:

/            SECTION      1.      This act may be known and cited as "Dylan's law".

SECTION      2.      Chapter 37, Title 44 of the 1976 Code is amended by adding:

     "Section 44-37-35.      (A)      Neonatal testing conducted pursuant to Section 44-37-30 must include testing for the following:
           (1)      Krabbe disease;
           (2)      Pompe disease; and
           (3)      Hurler syndrome.
     (B)      The department shall require additional lysosomal storage disorders to be tested upon the recommendations of the Newborn Screening Advisory Committee and in accordance with Section 44-37-30 pursuant to a duly promulgated regulation as testing for such disorders becomes available."

SECTION      3.      Section 44-37-30 of the 1976 Code is amended by adding an appropriately lettered subsection at the end to read:

     "( )      The department shall establish the Newborn Screening Advisory Committee to review the feasibility and advisability of including additional metabolic, genetic, and congenital disorders in the neonatal testing conducted pursuant to this section. The committee must be multidisciplinary and composed of members deemed appropriate by the department."

SECTION      4.      This act takes effect upon approval by the Governor.            /

Renumber sections to conform.
Amend title to conform.