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TO RECOGNIZE THE FORMATION OF THE INTERNATIONAL SACRAL AGENESIS CAUDAL REGRESSION ASSOCIATION AND TO PROCLAIM MONDAY, JUNE 6, 2015, AS "SACRAL AGENISIS CAUDAL REGRESSION SYNDROME AWARENESS DAY" IN SOUTH CAROLINA.
Whereas, Caudal Regression Syndrome (CRS), sometimes called sacral agenesis, is a rare disorder characterized by abnormal development of the lower spine of a developing fetus; and
Whereas, the name indicates that the some or all of the lumbar or sacral vertebrae or both are missing because they never formed; and
Whereas, a wide range of abnormalities, however, may occur with CRS, ranging from partial absence of the coccyx with no apparent symptoms to extensive abnormalities of the lower vertebrae, pelvis, and spine; and
Whereas, the condition of the spine often combines with other related physical issues, including the way the legs develop in utero or issues with internal organs, such as the kidneys and intestines; and
Whereas, only one to five persons out or every hundred thousand are affected by CRS, and many doctors have never even seen a patient with the condition; and
Whereas, estimating the incidence of CRS is difficult because of wide range of anomalies. Some cases are mild and others more severe, even fatal. The condition often impacts mobility, and in some cases, the lower extremities are very small, the legs being fused in a bent or a straight position with webbing between the calves and thighs. Weakness or paralysis can exist from the point where the spine ends; and
Whereas, other cases may exhibit only the absence of a small part of the lower spine and no paralysis at all, and the person with the condition may even be unaware of its existence until other health issues present themselves; and
Whereas, CRS is a challenging condition that can affect the entire family in many ways; therefore, family support is vital; and
Whereas, the international Sacral Agenesis Caudal Regression Association, iSACRA, and its website were created to help people understand CRS and learn more about the condition, and to connect those who have CRS with others who have the same condition; and
Whereas, the South Carolina General Assembly supports awareness about Caudal Regression Syndrome and the need for education and treatment of this rare condition. Now, therefore,
Be it resolved by the House of Representatives, the Senate concurring:
That the members of the South Carolina General Assembly, by this resolution, recognize the formation of the international Sacral Agenesis Caudal Regression Association and proclaim Monday, June 6, 2015, as "Sacral Agenesis Caudal Regression Syndrome Awareness Day" in South Carolina.
This web page was last updated on April 28, 2015 at 1:20 PM