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Sponsors: Reps. McCravy, Parks, West, Gagnon, Martin, Hiott, Burns, Huggins, G.R. Smith, Trantham, Ridgeway, Thayer, W. Cox, Toole, Johnson, Jefferson, Clary, Gilliard and Henegan
Document Path: l:\council\bills\cc\15237vr19.docx
Companion/Similar bill(s): 225
Introduced in the House on January 8, 2019
Introduced in the Senate on April 17, 2019
Last Amended on May 9, 2019
Passed by the General Assembly on May 9, 2019
Governor's Action: May 16, 2019, Signed
Summary: Dylan's Law
HISTORY OF LEGISLATIVE ACTIONS
Date Body Action Description with journal page number ------------------------------------------------------------------------------- 12/18/2018 House Prefiled 12/18/2018 House Referred to Committee on Medical, Military, Public and Municipal Affairs 1/8/2019 House Introduced and read first time (House Journal-page 64) 1/8/2019 House Referred to Committee on Medical, Military, Public and Municipal Affairs (House Journal-page 64) 1/22/2019 House Member(s) request name added as sponsor: Hiott 1/23/2019 House Member(s) request name added as sponsor: Burns, Huggins 1/31/2019 House Member(s) request name added as sponsor: G.R.Smith 2/5/2019 House Member(s) request name added as sponsor: Trantham 2/6/2019 House Member(s) request name added as sponsor: Ridgeway 2/12/2019 House Member(s) request name added as sponsor: Thayer, W.Cox 3/11/2019 House Member(s) request name added as sponsor: Toole 3/12/2019 House Member(s) request name added as sponsor: Johnson 3/28/2019 House Member(s) request name added as sponsor: Jefferson, Clary 4/3/2019 House Member(s) request name added as sponsor: Gilliard 4/4/2019 House Committee report: Favorable with amendment Medical, Military, Public and Municipal Affairs (House Journal-page 2) 4/5/2019 Scrivener's error corrected 4/9/2019 House Member(s) request name added as sponsor: Henegan 4/10/2019 House Amended (House Journal-page 39) 4/10/2019 House Read second time (House Journal-page 39) 4/10/2019 House Roll call Yeas-111 Nays-0 (House Journal-page 40) 4/11/2019 House Read third time and sent to Senate (House Journal-page 68) 4/17/2019 Senate Introduced and read first time (Senate Journal-page 5) 4/17/2019 Senate Referred to Committee on Medical Affairs (Senate Journal-page 5) 4/25/2019 Senate Committee report: Favorable Medical Affairs (Senate Journal-page 4) 5/7/2019 Senate Read second time (Senate Journal-page 55) 5/8/2019 Senate Amended (Senate Journal-page 62) 5/8/2019 Senate Read third time and returned to House with amendments (Senate Journal-page 62) 5/8/2019 Senate Roll call Ayes-41 Nays-1 (Senate Journal-page 62) 5/9/2019 House Senate amendment amended (House Journal-page 111) 5/9/2019 House Returned to Senate with amendments (House Journal-page 111) 5/9/2019 Senate Concurred in House amendment and enrolled (Senate Journal-page 70) 5/13/2019 Ratified R 75 5/16/2019 Signed By Governor
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VERSIONS OF THIS BILL
NOTE: THIS IS A TEMPORARY VERSION. THIS DOCUMENT WILL REMAIN IN THIS VERSION UNTIL FINAL APPROVAL BY THE LEGISLATIVE COUNCIL.
AN ACT TO AMEND THE CODE OF LAWS OF SOUTH CAROLINA, 1976, BY ADDING SECTION 44-37-35 SO AS TO REQUIRE NEONATAL TESTING FOR CERTAIN GENETIC DISORDERS AND DISEASES AND FOR OTHER PURPOSES; AND TO AMEND SECTION 44-37-30, RELATING TO NEONATAL TESTING OF CHILDREN, SO AS TO REQUIRE THE DEPARTMENT OF HEALTH AND ENVIRONMENTAL CONTROL TO ESTABLISH A NEWBORN SCREENING ADVISORY COMMITTEE TO REVIEW THE DESIRABILITY AND ADVISABILITY OF INCLUDING ADDITIONAL METABOLIC, GENETIC, AND CONGENITAL DISORDERS IN CERTAIN NEONATAL TESTING.
Be it enacted by the General Assembly of the State of South Carolina:
Required neonatal genetic testing
SECTION 1. Chapter 37, Title 44 of the 1976 Code is amended by adding:
"Section 44-37-35. (A) Neonatal testing conducted pursuant to Section 44-37-30 must include testing for the following:
(1) Krabbe disease;
(2) Pompe disease; and
(3) Hurler syndrome.
(B) The department shall require additional lysosomal storage disorders to be tested upon the recommendations of the Newborn Screening Advisory Committee and in accordance with Section 44-37-30 pursuant to a duly promulgated regulation as testing for such disorders becomes available."
Newborn Screening Advisory Committee, creation and duties
SECTION 2. Section 44-37-30 of the 1976 Code is amended by adding an appropriately lettered subsection at the end to read:
"( ) The department shall establish the Newborn Screening Advisory Committee to review the feasibility and advisability of including additional metabolic, genetic, and congenital disorders in the neonatal testing conducted pursuant to this section. The committee must be multidisciplinary and composed of members deemed appropriate by the department."
SECTION 3. This act takes effect upon approval by the Governor. Implementation of the act is contingent upon available funding from public sources.
Ratified the 13th day of May, 2019.
President of the Senate
Speaker of the House of Representatives
Approved the ____________ day of _____________________2019.
This web page was last updated on May 17, 2019 at 8:41 AM