South Carolina General Assembly
123rd Session, 2019-2020

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R75, H3036

STATUS INFORMATION

General Bill
Sponsors: Reps. McCravy, Parks, West, Gagnon, Martin, Hiott, Burns, Huggins, G.R. Smith, Trantham, Ridgeway, Thayer, W. Cox, Toole, Johnson, Jefferson, Clary, Gilliard and Henegan
Document Path: l:\council\bills\cc\15237vr19.docx
Companion/Similar bill(s): 225

Introduced in the House on January 8, 2019
Introduced in the Senate on April 17, 2019
Last Amended on May 9, 2019
Passed by the General Assembly on May 9, 2019
Governor's Action: May 16, 2019, Signed

Summary: Dylan's Law

HISTORY OF LEGISLATIVE ACTIONS

     Date      Body   Action Description with journal page number
-------------------------------------------------------------------------------
  12/18/2018  House   Prefiled
  12/18/2018  House   Referred to Committee on Medical, Military, Public and 
                        Municipal Affairs
    1/8/2019  House   Introduced and read first time (House Journal-page 64)
    1/8/2019  House   Referred to Committee on Medical, Military, Public and 
                        Municipal Affairs (House Journal-page 64)
   1/22/2019  House   Member(s) request name added as sponsor: Hiott
   1/23/2019  House   Member(s) request name added as sponsor: Burns, Huggins
   1/31/2019  House   Member(s) request name added as sponsor: G.R.Smith
    2/5/2019  House   Member(s) request name added as sponsor: Trantham
    2/6/2019  House   Member(s) request name added as sponsor: Ridgeway
   2/12/2019  House   Member(s) request name added as sponsor: Thayer, W.Cox
   3/11/2019  House   Member(s) request name added as sponsor: Toole
   3/12/2019  House   Member(s) request name added as sponsor: Johnson
   3/28/2019  House   Member(s) request name added as sponsor: Jefferson, Clary
    4/3/2019  House   Member(s) request name added as sponsor: Gilliard
    4/4/2019  House   Committee report: Favorable with amendment Medical, 
                        Military, Public and Municipal Affairs 
                        (House Journal-page 2)
    4/5/2019          Scrivener's error corrected
    4/9/2019  House   Member(s) request name added as sponsor: Henegan
   4/10/2019  House   Amended (House Journal-page 39)
   4/10/2019  House   Read second time (House Journal-page 39)
   4/10/2019  House   Roll call Yeas-111  Nays-0 (House Journal-page 40)
   4/11/2019  House   Read third time and sent to Senate 
                        (House Journal-page 68)
   4/17/2019  Senate  Introduced and read first time (Senate Journal-page 5)
   4/17/2019  Senate  Referred to Committee on Medical Affairs 
                        (Senate Journal-page 5)
   4/25/2019  Senate  Committee report: Favorable Medical Affairs 
                        (Senate Journal-page 4)
    5/7/2019  Senate  Read second time (Senate Journal-page 55)
    5/8/2019  Senate  Amended (Senate Journal-page 62)
    5/8/2019  Senate  Read third time and returned to House with amendments 
                        (Senate Journal-page 62)
    5/8/2019  Senate  Roll call Ayes-41  Nays-1 (Senate Journal-page 62)
    5/9/2019  House   Senate amendment amended (House Journal-page 111)
    5/9/2019  House   Returned to Senate with amendments 
                        (House Journal-page 111)
    5/9/2019  Senate  Concurred in House amendment and enrolled 
                        (Senate Journal-page 70)
   5/13/2019          Ratified R  75
   5/16/2019          Signed By Governor

View the latest legislative information at the website

VERSIONS OF THIS BILL

12/18/2018
4/4/2019
4/5/2019
4/10/2019
4/25/2019
5/8/2019
5/9/2019

(Text matches printed bills. Document has been reformatted to meet World Wide Web specifications.)

NOTE: THIS IS A TEMPORARY VERSION. THIS DOCUMENT WILL REMAIN IN THIS VERSION UNTIL FINAL APPROVAL BY THE LEGISLATIVE COUNCIL.

(R75, H3036)

AN ACT TO AMEND THE CODE OF LAWS OF SOUTH CAROLINA, 1976, BY ADDING SECTION 44-37-35 SO AS TO REQUIRE NEONATAL TESTING FOR CERTAIN GENETIC DISORDERS AND DISEASES AND FOR OTHER PURPOSES; AND TO AMEND SECTION 44-37-30, RELATING TO NEONATAL TESTING OF CHILDREN, SO AS TO REQUIRE THE DEPARTMENT OF HEALTH AND ENVIRONMENTAL CONTROL TO ESTABLISH A NEWBORN SCREENING ADVISORY COMMITTEE TO REVIEW THE DESIRABILITY AND ADVISABILITY OF INCLUDING ADDITIONAL METABOLIC, GENETIC, AND CONGENITAL DISORDERS IN CERTAIN NEONATAL TESTING.

Be it enacted by the General Assembly of the State of South Carolina:

Required neonatal genetic testing

SECTION    1.    Chapter 37, Title 44 of the 1976 Code is amended by adding:

"Section 44-37-35.    (A)    Neonatal testing conducted pursuant to Section 44-37-30 must include testing for the following:

(1)    Krabbe disease;

(2)    Pompe disease; and

(3)    Hurler syndrome.

(B)    The department shall require additional lysosomal storage disorders to be tested upon the recommendations of the Newborn Screening Advisory Committee and in accordance with Section 44-37-30 pursuant to a duly promulgated regulation as testing for such disorders becomes available."

Newborn Screening Advisory Committee, creation and duties

SECTION    2.    Section 44-37-30 of the 1976 Code is amended by adding an appropriately lettered subsection at the end to read:

"( )    The department shall establish the Newborn Screening Advisory Committee to review the feasibility and advisability of including additional metabolic, genetic, and congenital disorders in the neonatal testing conducted pursuant to this section. The committee must be multidisciplinary and composed of members deemed appropriate by the department."

Time effective

SECTION    3.    This act takes effect upon approval by the Governor. Implementation of the act is contingent upon available funding from public sources.

Ratified the 13th day of May, 2019.

__________________________________________

President of the Senate

___________________________________________

Speaker of the House of Representatives

Approved the ____________ day of _____________________2019.

___________________________________________

Governor

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This web page was last updated on May 17, 2019 at 8:41 AM