H 3036 {Rat #75, Act #55 of 2019} General Bill, By McCravy, Parks, West, Gagnon, 
Martin, Hiott, Burns, Huggins, G.R.Smith, Trantham, Ridgeway, Thayer, W.Cox, 
Toole, Johnson, Jefferson, Clary, Gilliard and Henegan

Similar(S 225)
 AN ACT TO AMEND THE CODE OF LAWS OF SOUTH CAROLINA, 1976, BY ADDING SECTION
 44-37-35 SO AS TO REQUIRE NEONATAL TESTING FOR CERTAIN GENETIC DISORDERS AND
 DISEASES AND FOR OTHER PURPOSES; AND TO AMEND SECTION 44-37-30, RELATING TO
 NEONATAL TESTING OF CHILDREN, SO AS TO REQUIRE THE DEPARTMENT OF HEALTH AND
 ENVIRONMENTAL CONTROL TO ESTABLISH A NEWBORN SCREENING ADVISORY COMMITTEE TO
 REVIEW THE DESIRABILITY AND ADVISABILITY OF INCLUDING ADDITIONAL METABOLIC,
 GENETIC, AND CONGENITAL DISORDERS IN CERTAIN NEONATAL TESTING. - ratified
 title
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   12/18/18  House  Prefiled
   12/18/18  House  Referred to Committee on Medical, Military,
                     Public and Municipal Affairs
   01/08/19  House  Introduced and read first time (House Journal-page 64)
   01/08/19  House  Referred to Committee on Medical, Military,
                     Public and Municipal Affairs (House Journal-page 64)
   01/22/19  House  Member(s) request name added as sponsor: Hiott
   01/23/19  House  Member(s) request name added as sponsor: Burns, Huggins
   01/31/19  House  Member(s) request name added as sponsor: G.R.Smith
   02/05/19  House  Member(s) request name added as sponsor: Trantham
   02/06/19  House  Member(s) request name added as sponsor: Ridgeway
   02/12/19  House  Member(s) request name added as sponsor: Thayer, W.Cox
   03/11/19  House  Member(s) request name added as sponsor: Toole
   03/12/19  House  Member(s) request name added as sponsor: Johnson
   03/28/19  House  Member(s) request name added as sponsor:
                     Jefferson, Clary
   04/03/19  House  Member(s) request name added as sponsor: Gilliard
   04/04/19  House  Committee report: Favorable with amendment
                     Medical, Military, Public and Municipal Affairs
                     (House Journal-page 2)
   04/05/19         Scrivener's error corrected
   04/09/19  House  Member(s) request name added as sponsor: Henegan
   04/10/19  House  Amended (House Journal-page 39)
   04/10/19  House  Read second time (House Journal-page 39)
   04/10/19  House  Roll call Yeas-111  Nays-0 (House Journal-page 40)
   04/11/19  House  Read third time and sent to Senate
                     (House Journal-page 68)
   04/17/19  Senate Introduced and read first time (Senate Journal-page 5)
   04/17/19  Senate Referred to Committee on Medical Affairs
                     (Senate Journal-page 5)
   04/25/19  Senate Committee report: Favorable Medical Affairs
                     (Senate Journal-page 4)
   05/07/19  Senate Read second time (Senate Journal-page 55)
   05/08/19  Senate Amended (Senate Journal-page 62)
   05/08/19  Senate Read third time and returned to House with
                     amendments (Senate Journal-page 62)
   05/08/19  Senate Roll call Ayes-41  Nays-1 (Senate Journal-page 62)
   05/09/19  House  Senate amendment amended (House Journal-page 111)
   05/09/19  House  Returned to Senate with amendments
                     (House Journal-page 111)
   05/09/19  Senate Concurred in House amendment and enrolled
                     (Senate Journal-page 70)
   05/13/19         Ratified R  75
   05/16/19         Signed By Governor
   05/31/19         Effective date  05/16/19
   06/05/19         Act No.  55

(A55, R75, H3036)

AN ACT TO AMEND THE CODE OF LAWS OF SOUTH CAROLINA, 1976, BY ADDING SECTION 44-37-35 SO AS TO REQUIRE NEONATAL TESTING FOR CERTAIN GENETIC DISORDERS AND DISEASES AND FOR OTHER PURPOSES; AND TO AMEND SECTION 44-37-30, RELATING TO NEONATAL TESTING OF CHILDREN, SO AS TO REQUIRE THE DEPARTMENT OF HEALTH AND ENVIRONMENTAL CONTROL TO ESTABLISH A NEWBORN SCREENING ADVISORY COMMITTEE TO REVIEW THE DESIRABILITY AND ADVISABILITY OF INCLUDING ADDITIONAL METABOLIC, GENETIC, AND CONGENITAL DISORDERS IN CERTAIN NEONATAL TESTING.

Be it enacted by the General Assembly of the State of South Carolina:

Required neonatal genetic testing

SECTION    1.    Chapter 37, Title 44 of the 1976 Code is amended by adding:

"Section 44-37-35.    (A)    Neonatal testing conducted pursuant to Section 44-37-30 must include testing for the following:

(1)    Krabbe disease;

(2)    Pompe disease; and

(3)    Hurler syndrome.

(B)    The department shall require additional lysosomal storage disorders to be tested upon the recommendations of the Newborn Screening Advisory Committee and in accordance with Section 44-37-30 pursuant to a duly promulgated regulation as testing for such disorders becomes available."

Newborn Screening Advisory Committee, creation and duties

SECTION    2.    Section 44-37-30 of the 1976 Code is amended by adding an appropriately lettered subsection at the end to read:

"( )    The department shall establish the Newborn Screening Advisory Committee to review the feasibility and advisability of including additional metabolic, genetic, and congenital disorders in the neonatal testing conducted pursuant to this section. The committee must be multidisciplinary and composed of members deemed appropriate by the department."

Time effective

SECTION    3.    This act takes effect upon approval by the Governor. Implementation of the act is contingent upon available funding from public sources.

Ratified the 13th day of May, 2019.

Approved the 16th day of May, 2019.